BIRTHDAY CELEBRATION COUNTDOWN!!

5 days til this Rare Girl turns 11 on March 12th! Prader-Willi Syndrome is caused by an abnormality of chromosome 15, and so for the next 15 days I will be sharing about our girl SiSi and her life living with PWS. February 28th we will also celebrate Rare Disease Day, so this falls at a perfect time because ALL DONATIONS made to the The Foundation for Prader-Willi Research are being matched by a special Grandmother now through Feb 28th! What better time to make your tax deductible donation?! Here is Siena’s BIRTHDAY CELEBRATION fundraising page!!! http://act.fpwr.org/site/TR?pg=personal&fr_id=1732…As always thank you for all the love and support you have shown our family over the years! (March 10th will mark 10 years since Siena’s diagnosis!!) xoxo

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