5 days til this Rare Girl turns 11 on March 12th! Prader-Willi Syndrome is caused by an abnormality of chromosome 15, and so for the next 15 days I will be sharing about our girl SiSi and her life living with PWS. February 28th we will also celebrate Rare Disease Day, so this falls at a perfect time because ALL DONATIONS made to the The Foundation for Prader-Willi Research are being matched by a special Grandmother now through Feb 28th! What better time to make your tax deductible donation?! Here is Siena’s BIRTHDAY CELEBRATION fundraising page!!!…As always thank you for all the love and support you have shown our family over the years! (March 10th will mark 10 years since Siena’s diagnosis!!) xoxo


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