About 6 months after learning Siena had Prader-Willi Syndrome, we photographed the wedding of Katie & Todd Foose. They were such a FUN couple… .We had an inkling that we wanted to befriend these newlyweds.:) .. Little did we know how powerful that friendship would become, little did we know how big their hearts were or how much they would love our girls. Saying that we have been touched by their support and advocacy for Siena is a total understatement. Katie & Todd write a blog called Table for 2, and after you read their latest post for Fig, you’ll understand why we look back on the day we met the Fooses and view it as one of the best days of our lives. Xoxo
Today is Rare Disease Day – Our daughter, Siena, has Prader-Willi Syndrome – a genetic disorder that is rare to most of the public, but a disease we live with every day. People all over the world, from every walk of life, live with a huge array of rare diseases.
Please participate in Rare Disease Day by sharing how a rare disease has affected your life. Is there an organization that has helped you?? Nominate them here and Siena’s HUGS will pick one winner by the end of today and donate $200 to the chosen organization…(if any business would like to join in the donation – let us know!!!)
Thank you for showing your SOLIDARITY with rare disease patients around the world.
Siena’s HUGS Foundation will be holding an Awareness Day on March 10th at the Annville Antique Station. Please join us!