We know many of our friends and family cannot attend the Philadelphia Live Life Full Gala in December and have asked if there are other ways they could contribute, so we decided to set up this fundraising page like we did last year. Your donation is tax deductible and 100% of it will go to the Foundation for Prader-Willi Research.
2017 started out a bit rocky for Siena, as she spent a week in the hospital because of an abdominal abscess, which to this today we are still not sure what caused it. What we do know is that without the research and knowledge that has been achieved by our team of PWS experts, Siena would not be the healthy little girl she is today. They guided the doctors at the hospital through the many medical difficulties associated with PWS and together we chose the best approach to treat the abscess. Siena’s team of experts is largely funded by the Foundation for Prader-Willi Syndome, and because of this, we have pledged our unwavering support to FPWR. Our mission of hope is that one day Siena, and all of her friends with Prader-Willi Syndrome, will live an independent life, free of the burdens that are associated with PWS, so that they may LIVE LIFE FULL.
As always, we are forever grateful to all of you for being our village. Without your love and support our light of hope would be very dim. xo
Andy, Jamie, Isla, Siena & Lucca