I am guessing you all know I have a slight obsession for raising awareness about Prader-Willi Syndrome, haha!!!!!
While I am normally found photographing conferences or various fundraisers for The Foundation for Prader Willi Research (FPWR group page), this year I was invited to join the planning committee for the 2nd Annual Live Life Full Gala in Philadelphia on December 2, 2017!!!!! I am so excited to help make this an amazing event and raise money for PWS research!!!!
We are looking for sponsors, silent auction items, as well as gala attendees (HINT, HINT)!!!! Please contact me if you or anyone you know may be interested in becoming involved AND PLEASE HELP ME SPREAD THE WORD!!!! HUGE THANK YOUS to Kate Yingling Schumacher & Trisha Hawthorne for joining the planning committee with me!!!! And of course, this wouldn’t even be possible without two amazing, super-hero PWS moms who pull it all together – Rebecca Wolf McWilliams & Samantha Chipetz!!! xo
Yes, I may be slightly obsessed with raising awareness for PWS, but I am COMPLETELY OBSESSED with finding a way to help our sweet Siena to LIVE LIFE FULL!!
#takethatPWS #cantstopwontstop #sienaeve #LiveLifeFullPhilly2017
Siena Eve 