Rare Disease Day/Month coming soon!

Siena Eve will turn 5 during 2015 Rare Disease month (March)! She was diagnosed with Prader-Willi Syndrome March 10, 2011…. oh, how far we have come since that dreaded phone call…. and now that we are stronger it is definitely time to kick this rare disease in the teeth! In the United States, a disease is defined as Rare when it affects less than 200,000 at any given time, PWS in one in over 7000 Rare Diseases. For more information check out Give RARE and Global Genes Project !

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