PWS Awareness Day #6

For Prader-Willi Awareness Month Siena’s big sister, Isla (soon to be 6), has decided to give up things that are her favorite color all of May. So she will not have anything RED (including eating off of her favorite red plate) until her birthday on June 1st !!:) xo

I have decided to go without beer and chocolate.  We are on Day 6 and it has been a lot harder to give up chocolate than I expected, however I know it doesn’t hold even a slight comparison to what life is like for those with Prader-Willi, so I will not even attempt to complain.  The other night I couldn’t sleep and as I laid there tossing and turning, I realized I couldn’t sleep because I was hungry. I almost started to cry, wondering if this is what Siena will go through her whole life?  Giving something up for one month is the least I can do for my little sweetheart.

Siena’s Daddy has given up is beloved wings for the month of May.  He just had his first wingless weekend – I am so proud of him 🙂  He has also given up chips and beer.  We will keep you posted as to how we are doing…. did you give something up for Prader-Willi Awareness Month in honor of someone special in your life?  If so, please share it with us!! 🙂  Together we WILL raise AWARENESS.  TOGETHER we WILL make a DIFFERENCE.



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