As you know, on March 10, 2011 just two days before her 1st birthday, our daughter Siena, was diagnosed with Prader-Willi Syndrome. I will never forget that day. We were overcome with emotion; sadness, fear…. anger. Since then Siena’s life has been filled with doctor and therapist appointments, medications and shots, and a healthy diet. But it is also filled with so much love – there is not a person that has met Siena that hasn’t just fallen in love with her. Instead of feelings of anger and fear, we are now filled with a purpose and a passion to do whatever we can to make Siena’s life the best it can be…. raising awareness for Prader-Willi is one element that can make a difference for Siena and in the lives of all our friends with PWS. Please join us & create Prader-Willi Awareness throughout the month of May 2013. Start by clicking on this link http://fpwr.org/pws-awareness-month to find out how you can get involved.