May is Prader-Willi Awareness Month!

As you know, on March 10, 2011 just two days before her 1st birthday, our daughter Siena, was diagnosed with Prader-Willi Syndrome.  I will never forget that day.  We were overcome with emotion; sadness, fear…. anger.  Since then Siena’s life has been filled with doctor and therapist appointments, medications and shots, and a healthy diet.  But it is also filled with so much love – there is not a person that has met Siena that hasn’t just fallen in love with her.  Instead of feelings of anger and fear, we are now filled with a purpose and a passion to do whatever we can to make Siena’s life the best it can be…. raising awareness for Prader-Willi is one element that can make a difference for Siena and in the lives of all our friends with PWS.  Please join us & create Prader-Willi Awareness throughout the month of May 2013.  Start by clicking on this link  http://fpwr.org/pws-awareness-month to find out how you can get involved.

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s