Thank you to Hildebrandt Learning Center at Masonic Village!

As we walked into school this morning to drop off the girls, there at the entrance was Siena’s Global Gene Project Badge. A very sweet soul and teacher at the center, Jessica Vogel (, organized everyone to wear blue jeans tomorrow, February 28, in support of Siena and Rare Disease Day.

Thank you in advance to everyone who participates, we are truly humbled.  xoxo

                 Did you know there are 7000 rare diseases?
                 80 percent of rare diseases are caused by faulty genes.


Follow us as we take PWS to the White House on March 6th!


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