Emma’s Virtual PWS Walk

Our friends in Hershey, the Varios, are also a fellow PWS family…their daughter,Emma, was diagnosed with Prader-Willi Syndrome this past winter, when she was just a few days old . Emma and her family have not had the easiest time the past few months and have been in and out of emergency rooms, dealing with incorrect and clogging feeding tubes, not to mention the struggle they endured with the insurance companies to get Emma approved for Growth Hormone. Due to a recent hospitalization, Emma’s parents decided to try a Virtual Walk fundraiser instead of an actual walk this year…. I encourage you all to check out Emma’s virtual walk page and share with others, the Varios would benefit tremendously from your support, whether it be monetary and/or emotional support! Thank you !!!!!
Emmas Virtual Walk

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