Siena’s 5K PWS Walk 2012
September 22, 2012
When?
Saturday September 22, 2012
(rain or shine)
9:00 AM: Registration
10:00 AM: Walk starts
Cost?
Pre-Registration (ends Sept. 19th): $20 for participants age 10 and over, Includes FREE 2012 Walk T-shirt
Registration Day of Walk: $25 for participants age 10 and over, Includes FREE 2012 Walk T-shirt
(free for children under the age of 10, Walk T-shirt NOT included)
To Register Visit: http://www.sienaswalk.com
Where?
South Hills Park (Orchard Pavilion)
1100 South Lincoln Avenue
Lebanon, PA 17042
General Information:
Every registered walker will receive complimentary snacks and beverages,
as well as ONE FREE raffle ticket, which can be used to win a themed basket.
Additional raffle tickets will be available for purchase. There will also be a Silent Auction!
If you have any questions, please contact the event coordinators:
Jamie Schoenberger at jamieschoenberger@gmail.com (610-457-5996)
This event is open to anyone who wishes to raise awareness of Prader-Willi Syndrome and support Siena Schoenberger. The purpose of this walk is to raise monies for Siena’s Special Needs Trust.
What is Prader-Willi Syndrome? PWS is a disorder of chromosome 15, Prevalence: 1:12,000- 15,000 (both sexes, all races) Major characteristics: hypotonia, hypogonadism, hyperphagia, cognitive impairment, difficult behaviors. 2 year-old, Siena, was diagnosed with PWS in March 2011. Raising awareness about Prader-Willi Syndrome will help people understand this genetic disorder and could possibly bring us closer to finding a cure!! For more information about PWS, please visit http://www.pwsausa.org