It has been a long time since I last posted on here and I am not sure where to even begin.  Back in November, we attended the PWSA Conference in Florida – it was life changing.  Meeting people in the PWS community was eye-opening and so comforting for us.  We feel humbled to be part of such a wonderful community of people.  We came home with a new outlook on our life with PWS and an even stronger commitment to fight. In 2012, we will control Prader-Willi Syndrome, it will NOT control us.

One of my New Year’s resolutions is to write on here more often and to try to speak more from the heart… sometimes I feel like I just want to write the details of a doctor’s appointment and not add any emotion – and in the end – who is that really helping?? We will see how this goes… I thank you for following along and Happy New Year!